Iranian Journal of Pediatrics

Published by: Kowsar

Lived Experience of Caregivers of Family-Centered Care in the Neonatal Intensive Care Unit: “Evocation of Being at Home”

Zahra Hadian Shirazi 1 , Farkhondeh Sharif 2 , * , Mahnaz Rakhshan 2 , Narjes Pishva 3 and Faezeh Jahanpour 4
Authors Information
1 Department of Nursing, School of Nursing and Midwifery, Shiraz University of Medical Sciences, Shiraz, IR Iran
2 Community Based Psychiatric Care Research Center, Shiraz University of Medical Sciences, Shiraz, IR Iran
3 Neonatology Research Center, Shiraz University of Medical Sciences, Shiraz, IR Iran
4 School of Nursing and Midwifery, Bushehr University of Medical Sciences, Bushehr, IR Iran
Article information
  • Iranian Journal of Pediatrics: October 2016, 26 (5); e3960
  • Published Online: July 26, 2016
  • Article Type: Research Article
  • Received: August 31, 2015
  • Revised: March 8, 2016
  • Accepted: March 17, 2016
  • DOI: 10.5812/ijp.3960

To Cite: Hadian Shirazi Z, Sharif F, Rakhshan M, Pishva N, Jahanpour F. Lived Experience of Caregivers of Family-Centered Care in the Neonatal Intensive Care Unit: “Evocation of Being at Home”, Iran J Pediatr. 2016 ; 26(5):e3960. doi: 10.5812/ijp.3960.

Copyright © 2016, Growth & Development Research Center. This is an open-access article distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License ( which permits copy and redistribute the material just in noncommercial usages, provided the original work is properly cited.
1. Background
2. Objectives
3. Methods
4. Results
5. Discussion
  • 1. Martins LA, Silva DS, Aguiar ACSA, Morais AC. Insertion of the Family in the Neonatal Intensive Care Unit: A Systematic Review. J Nurs UFPE on line. 2012; 6(4)
  • 2. Frost M, Green A, Gance-Cleveland B, Kersten R, Irby C. Improving family-centered care through research. J Pediatr Nurs. 2010; 25(2): 144-7[DOI][PubMed]
  • 3. McKiernan M, McCarthy G. Family members' lived experience in the intensive care unit: a phemenological study. Intensive Crit Care Nurs. 2010; 26(5): 254-61[DOI][PubMed]
  • 4. Molina RC, Fonseca EL, Waidman MA, Marcon SS. [The family's perception of its presence at the pediatric and neonatal intensive care unit]. Rev Esc Enferm USP. 2009; 43(3): 630-8[PubMed]
  • 5. Trajkovski S, Schmied V, Vickers M, Jackson D. Neonatal nurses' perspectives of family-centred care: a qualitative study. J Clin Nurs. 2012; 21(17-18): 2477-87[DOI][PubMed]
  • 6. Manning AN. The NICU experience: how does it affect the parents' relationship? J Perinat Neonatal Nurs. 2012; 26(4): 353-7[DOI][PubMed]
  • 7. Hockenberry MJ, Wilson D. Wong`s Nursing Care of Infants and Children. 2011;
  • 8. Gibbins S. Pain management: What is the Role of the Parent. Pain Column. 2008; 8(3): 116-7
  • 9. Griffin T, Abraham M. Transition to home from the newborn intensive care unit: applying the principles of family-centered care to the discharge process. J Perinat Neonatal Nurs. 2006; 20(3): 243-9[PubMed]
  • 10. Conway J, Celenza J, Abraham M. Advancing patient- and family-centered newborn intensive care. 2007;
  • 11. Nichols A. Sustainable family centred care in the neonatal unit. J Neonat Nurs. 2013; 19(5): 266-70
  • 12. Fegran L. Parents and Nurses in a Neonatal Intensive Care Unit- The Development of a Mutual benefical Partnership In the Care of the Infant 2009;
  • 13. Cooper LG, Gooding JS, Gallagher J, Sternesky L, Ledsky R, Berns SD. Impact of a family-centered care initiative on NICU care, staff and families. J Perinatol. 2007; 27 Suppl 2: 32-7[DOI][PubMed]
  • 14. Staniszewska S, Brett J, Redshaw M, Hamilton K, Newburn M, Jones N, et al. The POPPY study: developing a model of family-centred care for neonatal units. Worldviews Evid Based Nurs. 2012; 9(4): 243-55[DOI][PubMed]
  • 15. Ramezani T, Hadian Shirazi Z, Sabet Sarvestani R, Moattari M. Family-centered care in neonatal intensive care unit: a concept analysis. Int J Community Based Nurs Midwifery. 2014; 2(4): 268-78[PubMed]
  • 16. Ortenstrand A, Westrup B, Brostrom EB, Sarman I, Akerstrom S, Brune T, et al. The Stockholm Neonatal Family Centered Care Study: effects on length of stay and infant morbidity. Pediatrics. 2010; 125(2): 278-85[DOI][PubMed]
  • 17. Gooding JS, Cooper LG, Blaine AI, Franck LS, Howse JL, Berns SD. Family support and family-centered care in the neonatal intensive care unit: origins, advances, impact. Semin Perinatol. 2011; 35(1): 20-8[DOI][PubMed]
  • 18. Ladak LA, Premji SS, Amanullah MM, Haque A, Ajani K, Siddiqui FJ. Family-centered rounds in Pakistani pediatric intensive care settings: non-randomized pre- and post-study design. Int J Nurs Stud. 2013; 50(6): 717-26[DOI][PubMed]
  • 19. Shields L. Questioning family-centred care. J Clin Nurs. 2010; 19(17-18): 2629-38[DOI][PubMed]
  • 20. Oskouie F, Peyrovi H. Pazhouheshe keyfi dar parastari [In persian]. 2005;
  • 21. Streubert HJ, Carpenter DR. Qualitative Research in Nursing: Advancing the Humanistic Imperative. 2011;
  • 22. Van Manen M. Researching Lived Experience: Human Science for an Action Sensitive Pedagogy. 2001;
  • 23. Dowling M. From Husserl to van Manen. A review of different phenomenological approaches. Int J Nurs Stud. 2007; 44(1): 131-42[DOI][PubMed]
  • 24. Van Dell T. Patient- and family-centered care in the neonatal intensive care unit in our own words: one family's story. AACN Adv Crit Care. 2011; 22(4): 298-300[DOI][PubMed]
  • 25. Polit DF, Beck CT. Nursing Research: Generating and Assessing Evidence for Nursing Practice. 2012;
  • 26. van Manen M. Phenomenology of practice: Meaning-giving methods in phenomenological research and writing 2014;
  • 27. Kearvell H, Grant J. Getting connected: How nurses can support mother/infant attachment in the neonatal intensive care unit. Aust J Adv Nurs. 2010; 27(3): 75-82
  • 28. Beck SA, Weis J, Greisen G. Room for family-centered care - a qualitative evauation of a neonatal intensive care unit remodeling project. J Neonat Nurs. 2009; 15(3): 88-99
  • 29. Fegran L, Helseth S. The parent-nurse relationship in the neonatal intensive care unit context--closeness and emotional involvement. Scand J Caring Sci. 2009; 23(4): 667-73[DOI][PubMed]
  • 30. Fegran L, Fagermoen MS, Helseth S. Development of parent-nurse relationships in neonatal intensive care units--from closeness to detachment. J Adv Nurs. 2008; 64(4): 363-71[DOI][PubMed]
  • 31. Aliabadi F, Kamali M, Borimnejad L, Rassafiani M, Rasti M, Shafaroodi N, et al. Supporting-emotional needs of Iranian parents with premature infants admitted to Neonatal Intensive Care Units. Med J Islam Repub Iran. 2014; 28: 53[PubMed]
  • 32. AbuAlRub RF. Job stress, job performance, and social support among hospital nurses. J Nurs Scholarsh. 2004; 36(1): 73-8[PubMed]
  • 33. Wigert H, Dellenmark Blom M, Bry K. Parents' experiences of communication with neonatal intensive-care unit staff: an interview study. BMC Pediatr. 2014; 14: 304[DOI][PubMed]
  • 34. Erlandsson K, Fagerberg I. Mothers' lived experiences of co-care and part-care after birth, and their strong desire to be close to their baby. Midwifery. 2005; 21(2): 131-8[DOI][PubMed]
  • 35. Malakouti J, Jebraeili M, Valizadeh S, Babapour J. Mothers' experience of having a preterm infant in the Neonatal Intensive Care Unit, a phenomenological study. J Crit Care Nurs. 2013; 5(4): 172-81
  • 36. Lundqvist P, Westas LH, Hallstrom I. From distance toward proximity: fathers lived experience of caring for their preterm infants. J Pediatr Nurs. 2007; 22(6): 490-7[DOI][PubMed]
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